Patient Resources Updated

If you are new to our group, or new to the website, welcome! Please visit the “For Patients” page under Resources in the menu for a list of local Patient-Recommended Providers.  This list is under regular review, and more will will added as available. ...

March 2025 Chicago EDS Meetings

Chicago EDS First Saturdays Meeting (The more structured one) March 1, 2025 11:00AM – 1:00PM Virtual Meetup Via Zoom Topic:  General Questions March 25, 2025 6:00PM – 7:30PM Event only available through the Chicago EDS Facebook group  (as this is a...

February 2025 Meetings

Chicago EDS First Saturdays Meeting (The more structured one) February 1, 2025 11:00AM – 1:00PM Virtual Meetup Via Zoom Topic: Co-Morbidities February 25, 2025 6:00PM Event only available through the Chicago EDS Facebook group  (as this is a talk about literally...

January 2025 Meetings

Chicago EDS First Saturdays Meeting (The more structured one) January 4, 2025 11:00AM – 1:00PM Virtual Meetup Via Zoom Topic: Low Dose Naltrexone January 28, 2025 6:00PM Event only available through the Chicago EDS Facebook group, as this is a talk about...

Connective Tissue Coalition

A new resource is available!  Check it out! https://www.connectivetissuecoalition.org/ “Connective Tissue Coalition (CTC) empowers individuals and families affected by Ehlers-Danlos Syndrome (EDS), Marfan Syndrome, and Loeys-Dietz Syndrome (LDS) through...