June 2025 Meetings

No Saturday Morning Zoom meeting is planned for June at this time. Two Tuesday Casual Evening Zoom meetings due to Memorial Day!  You must be a member of the FB group to gain access. June 3, 2025, 6pm – 7:30pm June 24, 2025, 6pm – 7:30pm Event Notes from...

May 2025 Meetings

Saturday Meeting: May 3, 2025  11 AM – 1 PM Topic:  May is Ehlers-Danlos Syndromes Awareness month. Come share what you are doing to spread awareness and pick up ideas too. Let’s talk about the bigger picture of awareness, what it means overall and...

April 2025 Meetings

Saturday Meeting: April 5, 2025  11 AM – 1 PM Topic: MCAS and Allergies Link available through Chicago EDS Facebook group and through Meetup. (Join us April 5th Join us for our monthly First Saturday EDS Chicago Support and Awareness group meeting, this month...

Patient Resources Updated

If you are new to our group, or new to the website, welcome! Please visit the “For Patients” page under Resources in the menu for a list of local Patient-Recommended Providers.  This list is under regular review, and more will will added as available. ...

March 2025 Chicago EDS Meetings

Chicago EDS First Saturdays Meeting (The more structured one) March 1, 2025 11:00AM – 1:00PM Virtual Meetup Via Zoom Topic:  General Questions March 25, 2025 6:00PM – 7:30PM Event only available through the Chicago EDS Facebook group  (as this is a...

February 2025 Meetings

Chicago EDS First Saturdays Meeting (The more structured one) February 1, 2025 11:00AM – 1:00PM Virtual Meetup Via Zoom Topic: Co-Morbidities February 25, 2025 6:00PM Event only available through the Chicago EDS Facebook group  (as this is a talk about literally...

January 2025 Meetings

Chicago EDS First Saturdays Meeting (The more structured one) January 4, 2025 11:00AM – 1:00PM Virtual Meetup Via Zoom Topic: Low Dose Naltrexone January 28, 2025 6:00PM Event only available through the Chicago EDS Facebook group, as this is a talk about...

December 2024 Meetings

(November 19, 2024 Casual Zoom has already occurred. – LJ 11/21/24) December 7, 2024 EDS Holiday Party 11:00 AM – 1:00 PM Hybrid (In Person, Zoom) For December 2024, this will be our annual In Person Holiday Party!Here is the RSVP link for our Zebra...

Connective Tissue Coalition

A new resource is available!  Check it out! https://www.connectivetissuecoalition.org/ “Connective Tissue Coalition (CTC) empowers individuals and families affected by Ehlers-Danlos Syndrome (EDS), Marfan Syndrome, and Loeys-Dietz Syndrome (LDS) through...