Chicago EDS Patient Recommended Provider List
* These are providers recommended by patient members of our Chicago EDS group. If the provider does not wish to be included on our list at this time, please leave a comment. The name and info will be removed. (Providers listed by primary specialty/focus. Not in alphabetical order as yet.)
**Experiences will vary for each person/patient, so these providers may not be right for everyone! However, it is nice to have a list of providers who may be more EDS (and related co-morbidities) knowledgeable than others. You may also need to check if your insurance provider covers the following providers.
*** Updated 3/25/2025
Neurology:
- Dr. Octavia Kincaid, Neurology/Neuromuscular/Dysautonomia, Rush (Scheduling new patients well into 2027 at present. Has a PA now.)
- Dr. Alexandru Barboi, Neurology/Neuromuscular/Dysautonomia, IU Health (Now located in Indianapolis at IU Health as of summer 2024 – Can see patients in person or virtually from Illinois and Wisconsin, as he maintains his licenses in these states. Scheduling is now close to a year out.)
- Dr. Timothy C. Hain, Neurology, Northwestern, Chicago
Physical Medicine and Rehabilitation/Physiatry:
- Dr. Victoria A. Brander, Physical Medicine and Rehabilitation, Global Health Partners at Northwestern, Chicago (Does not take insurance. You may be able to submit to your insurance yourself for reimbursement. Dr. Brander does diagnose EDS when appropriate.) Dr. Atassi, in the same clinic, is also patient recommended. https://www.globalhealthpartnersnu.com/
Pain Management:
- Dr. David Dickerson, Pain Management, NorthShore/Endeavor, Skokie (He has PAs, so you may end up seeing them after the first appointment or so, depending on the situation.)
- Dr. Goran Tubic, Pain Management, Bolingbrook & Hinsdale (https://www.chicagolandpainmanagement.com/)
Genetics/Connective Tissue Disorders:
- Dr. Brad T. Tinkle, MD/PhD, Clinical Geneticist (Now located in Indianapolis.) https://www.drbradtinkle.com/
- Dr. Christina Laukaitis, MD/PhD/FACP/FACMG, Genetics/Hereditary Connective Tissue Disorders & Undiagnosed Conditions, CarleHealth, Urbana, IL
Optometry/Neuro-Optometry/Ophthamalogy:
- Marsha Sorenson, Doctor of Optometry, Neuro-Optometry (https://www.visionrehabassociates.com/)
- Dr. Neil Margolis, Neuro Developmental Optometrist, Visual Symptoms Treatment Center, Arlington Heights https://www.visualsymptomstreatmentcenter.com
Occupational and Physical Therapy
- Mary Kiolbasa, Occupational Therapist, NorthShore/Endeavor, Lincolnshire
- Dr. Tim Kosiba, PT, DPT, NorthShore/Endeavor, Lincolnshire
- Dr. Shaun Phelan, PT, DPT, Physical Therapist, Oak Brook https://body,gears.com/location/physical-therapy-oak-brook/
- Movement Physical Therapy, Chicago (Streeterville, River North, West Loop, and Ravenswood) https://www.movementphysicaltherapy.com/
- Lilian Holm, PT, DPT, Lillian Holm Wellness, Evanston https://www.lilianholm.com/
Gastroenterology:
- Dr. Leslie Yang, Gastroenterology, NorthShore/Endeavor, Evanston and Skokie
- Dr. Darren Brenner, Gastroenterology, Northwestern, Glenview and Chicago
Orthopedics
- Dr. Daniel Bohl, Orthopedic Foot and Ankle Surgeon, Midwest Orthopedics, Rush (https://www.danielbohl.com/)
Cardiology/Vascular:
- Dr. Alfonso J. Tarfur, Vascular Surgeon, NorthShore/Endeavor in Skokie
Pediatrics:
- Dr. Don Seidman, Pediatrician, Duly Health and Care in Elmhurst
Psychology/LCSW:
- Robyn Seidman, MA, LCSW (Licensed Clinical Social Worker), Chicago (Uniquely knowledgeable about the chronic illness experience, EDS and its comorbidities. Offers a sliding scale if eligible.)
- Caroline Antler, Ph.D, Health/Rehabilitation Psychologist (Note: Does not take insurance.) https://antlerclinic.com/
Hematology/Oncology
- Dr. Shivi Jain, Hematology/Oncology, Rush, Chicago
Headache:
- Dr. George Urban, Internist, Diamond Headache Clinic, Chicago
Rheumatology
- Dr. Craig Smuda, MD/PhD, Rheumatology, UChicago Medicine AdventHealth Clinic, Bolingbrook
Chiropractor/Nutrition
- Dr. Joe Hanson, Chiropractor/Nutrition, Omnis Chiropractic Associates, Glenview
Gynecology/OBGYN
- Dr. Frank F. Tu, Gynecology, NorthShore/Endeavor, Skokie and Highland Park